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Supreme Decree No. 004-2025-SA: Supreme Decree that regulates the provisions of Article 9 of Law No. 29698, Law that declares the treatment of people suffering from rare or orphan diseases to be of national interest and preferential attention, as amended by Law No. 31738

by fiquiong | Nov 30, 2025 | News

Supreme Decree regulating the provisions of Article 9 of Law No. 29698, Law declaring the treatment of persons suffering from rare or orphan diseases to be of national interest and preferential attention, as amended by Law No. 31738 Read More Decreto Supremo N°...

ETS Published by INS: Lumacaftor +ivacaftor for cystic fibrosis due to homozygous F508del mutation and mild or moderate pulmonary involvement in pediatric patients

by fiquiong | Nov 30, 2025 | News

This Health Technology Assessment (HTA) describes the scientific evidence on the efficacy and safety of lumacaftor + ivacaftor for cystic fibrosis (CF) due to the homozygous F508del mutation and mild to moderate lung involvement in pediatric patients.This health...

Newborn Screening – Approval of Law 31975

by fiquiong | Nov 30, 2025 | News

Law amending Law 29885, LAW DECLARING THE CREATION OF THE Universal NEONATAL SCREENING PROGRAM TO BE OF NATIONAL INTEREST. It includes, among the tests that form part of the Screening, the Cystic Fibrosis screening. Read More...

The Constitutional Court declared the lack of healthcare for people suffering from rare and orphan diseases in Peru an unconstitutional state of affairs – August 2025

by fiquiong | Nov 30, 2025 | News

The Constitutional Court determined that there are deficiencies in the care provided to people suffering from respiratory diseases. For example, 1) in diagnosis and the time to diagnosis, whether genetic or not; 2) in specialized medical treatment (protocols,...