by fiquiong | Nov 30, 2025 | News
Supreme Decree No. 004-2019-SA The Regulations of Law No. 29698, Law that declares the Treatment of Persons Suffering from Rare or Orphan Diseases to be of National Interest and Preferential Attention, are approved, consisting of 7 chapters, 14 articles, 7 final...
by fiquiong | Nov 30, 2025 | News
Supreme Decree regulating the provisions of Article 9 of Law No. 29698, Law declaring the treatment of persons suffering from rare or orphan diseases to be of national interest and preferential attention, as amended by Law No. 31738 Read More Decreto Supremo N°...
by fiquiong | Nov 30, 2025 | News
This Health Technology Assessment (HTA) describes the scientific evidence on the efficacy and safety of lumacaftor + ivacaftor for cystic fibrosis (CF) due to the homozygous F508del mutation and mild to moderate lung involvement in pediatric patients.This health...
by fiquiong | Nov 30, 2025 | News
Law amending Law 29885, LAW DECLARING THE CREATION OF THE Universal NEONATAL SCREENING PROGRAM TO BE OF NATIONAL INTEREST. It includes, among the tests that form part of the Screening, the Cystic Fibrosis screening. Read More...
by fiquiong | Nov 30, 2025 | News
The Constitutional Court determined that there are deficiencies in the care provided to people suffering from respiratory diseases. For example, 1) in diagnosis and the time to diagnosis, whether genetic or not; 2) in specialized medical treatment (protocols,...
