ABOUT US
Who are we?
FIQUI Peru is a non-profit Association of Parents and Friends of Cystic Fibrosis Patients, which safeguards and protects the rights of cystic fibrosis patients.
Cystic fibrosis is a rare, genetic, hereditary, degenerative, and non-contagious disease, little known in Peru, and due to a lack of timely diagnosis and adequate treatment, it takes lives at a very early age.
Currently there are approximately 110 patients, of which 80% are minors.
Cystic fibrosis is a rare, genetic, hereditary, degenerative, and non-contagious disease, little known in Peru, and due to a lack of timely diagnosis and adequate treatment, it takes lives at a very early age.
Currently there are approximately 110 patients, of which 80% are minors.
Spread the word and donate!
What do we do?
- We help patients to get the care they need and receive their medications properly.
- We advocate for care and medications with health entities.
- We organize training events for parents and professionals.
Goals
- Achieve proper and timely Delivery of appropriate care and medications for all patients diagnosed with CF.
- To advocate with health authorities for CF patients rights to receive appropriate and timely care and treatment.
- Train and keep up to date parents and professionals on CF teatment.
What do we need?
1. A campaign to raise awareness and disseminate information about Cystic Fibrosis
2. Enforce the Mandatory Neonatal Screening Law to ensure timely diagnoses.
3. That, as a rare disease, it receives adequate budgetary support to provide hospitals with what is necessary for treatment.
4. That the treatments arrive on time.
5. That there are no periods of shortage of medicines, which prevent adequate compliance with treatments.
6. That the Cystic Fibrosis Units in hospitals that have them be strengthened and that units be created in hospitals that do not yet have them.
7. Creation of Specialized Centers for Cystic Fibrosis
8. Financial support for low-income patients to help them receive appropriate treatment, medicines, nutritional supplements, and respiratory therapy services.
9. Support from professional psychologists and respiratory therapists who offer free or low-cost care at the Association’s gym.
10. Create more respiratory gyms in different parts of the country so that our patients can attend regularly to receive their therapies.
2. Enforce the Mandatory Neonatal Screening Law to ensure timely diagnoses.
3. That, as a rare disease, it receives adequate budgetary support to provide hospitals with what is necessary for treatment.
4. That the treatments arrive on time.
5. That there are no periods of shortage of medicines, which prevent adequate compliance with treatments.
6. That the Cystic Fibrosis Units in hospitals that have them be strengthened and that units be created in hospitals that do not yet have them.
7. Creation of Specialized Centers for Cystic Fibrosis
8. Financial support for low-income patients to help them receive appropriate treatment, medicines, nutritional supplements, and respiratory therapy services.
9. Support from professional psychologists and respiratory therapists who offer free or low-cost care at the Association’s gym.
10. Create more respiratory gyms in different parts of the country so that our patients can attend regularly to receive their therapies.